Matthew has been on the new medication, Banzel, for over 4 weeks now. He still is having multiple seizures daily. He seems to be focusing on toys and people better. He has an appointment at Phoenix Children's in about a week, but I didn't want to wait that long. I spoke with the doctor yesterday and he is going to add another medication, Lamictal. I am familiar with this medication from working in psych. I am aware of the side effects and the "lamicatal rash". This is a medication that you start at a very low dose and slowly work up to the full dose. We will have to go to a special pharmacy (compound) initially to get the small dose formulated.
Matthew went swimming in a friend's pool over the weekend. He had a very good time. He cannot sit up yet, which is a bit tough when you're in the pool. I sat on the steps mostly with him and he did well. He wanted to stand a lot, too. The problem is when he stands (with help), he flings his body back. He does the same action that he does when he's on his tummy~kind of like a cobra. It's good when he's on his belly, but not standing or sitting. This is something that can be addressed by a physical therapist.
Speaking of PT, we have had some in home evaluations and we have been referred to the DD system. (developmentally delayed) I believe this is a Federal program and they will make sure Matthew's needs are taken care of. Once he's in this system, he will be in this system for life. They will help provide equipment he may need, services and referrals. I believe they do not go through insurance and it is no cost to us.
We see improvements with Matthew, but again, it's a very slow process. We look forward to him sitting up. It will be so much easier for me...When I go to the grocery store, I have him in the stroller and I pull the shopping cart. When we go out for dinner, I have to haul him in our jogging stroller.
Just finished breakfast.
Rolling around
His hair is getting so long, but Chris doesn't want to miss his 1st hair cut!
Mallory the Monkey is his new BFF. He loves to look at her.
Steve in the pool with Matt.
Matt and I sitting on the steps
