Monday was our initial appointment with Dr. R. He is in the same practice as old previous provider.
Dr. R commented on Matthew's helmet. He said, "oh he has a Star Helmet". Star is the brand. We were very impressed. The previous Dr had commented on the helmet being for seizures, not reshaping as it is indicated for. Dr. R feels that Matthew will outgrow the Infantile Spasms. He is going to work with us to get him off of most of his medication. We are going to keep the Keppra. Matthew probably will still have to live with Epilepsy. Dr. R was/is familiar with Matthew's ACTH medication. Because this medication is intense (and expensive) we wanted to make sure someone in the Pensacola area would be able to follow Matthew with confidence.
We follow up with Dr. R in December. We will have another EEG before his appointment.
Subscribe to:
Post Comments (Atom)
1 comment:
It sounds like he's a good doctor - at least knowledgable. That's great! I'm glad you guys don't have to go all the way back to Chicago for checkups.
Post a Comment