EEG

Last Thursday Matthew was running a ever of 104.8. Once we gave him some Motrin and a cool bath, it started to slowly come down. It took about 24 hours and then it was normal again.

Friday was Matthew's EEG and follow up appointment with Dr. R. We are continuing to take Matthew off some of the harsh medications that he was previously prescribed. We are done with the ACTH (whoo!). Dr. R said that while Matthew was coming off the ACTH, it compromised his immune system. He said that if Matthew gets sick, he has virtually no way to fight the infection. This would explain the high fever an the vomiting Thursday. Dr. R suggested we go to the pediatric emergency room, if needed. Dr. R said that he was on call all weekend and he would be more than happy to help out with Matthew. He said that Matthew may need a bolus of steroids to fight an infections. But, he got over the bug without an ER visit.

The EEG lasted about 20 minutes. The results indicate there are no seizures present. However, there is still activity in the part of his brain that controls vision. The activity would probably turn into a seizure IF he were not on medications. This would explain why Matthew had a hard time watching us.

Dr. R showed me part of the EEG that was "perfect". So, the increased activity is not constant, but it's still present.

Matthew continues to smile, laugh, play, kick and wiggle. His appetite has been off, but he's been fighting the last part of this bug still. He is gaining more head control and does not need much support to hold his head up (he's like a 1 mo old with his head when he sits up with help). He seems to want to stand...if we put his feet on the floor, he pushes up like he is trying to stand. It's tough trying to hold a 25 lb wiggly/floppy baby up to help him stand. But, he's improving, so we do what we need to do.