Tomorrow Matthew has an EEG to check the status of the ACTH. We started the ACTH 5 days ago. I do not quite see the results as I did before, however, before his seizures were much more severe. We are on 1/4 dose than we were before. He continues to have myoclonic seizures. I notice them mostly when he wakes up around 3AM. He is unable to fall back asleep because the seizures keep him up.
Tomorrow we will see what the EEG shows and consider our next step...which may be surgery or increase the ACTH.
Matthew had a great physical therapy session today. He was holding his head better and sitting up with support very well.
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