Tuesday, October 14, 2008
Children's Hospital
I'm waiting for the RN to come in to have me give Matthew an injection--so I will be brief. We are admitted to Children's Hospital out here in IL. We have a diagnosis of Infantile Spasms, which is different that what we have been treating for--Epilepsy. We will be inpatient for a couple of days, the doctor is optimistic we will see results within a few days. He feels we will see Matthew have an uplifted personality. He feels that seizures will stop with this medication. The medication is called ACTH. I will write more in detail in the future. I will say, however, it is projected to cost about $200,000 for the course of the treatment. That is medication only, not hospital stay, not tests, etc. The medication is $25,000 per vial of medication. It is an intramuscular injection which I will have to give him. Matt's being a little trooper and we're hoping to see the difference in a few days.
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