I called the Ped Neuro that we would like to take Matthew to yesterday. I had his RN's direct line. She explained that there is a 2 mo wait for an appointment~BUT there is a stand-by list. I of course, was extra perky & sweet as sugar to her because she controls the list. She said that she goes down the list when there is a cancellation. She explained that she won't leave a message, so if person #1 doesn't answer the phone she calls person #2. I told her we're pretty much up here waiting around for appointment. She seemed optimistic that we would be in within a week or so.
Matthew's seizures have not really improving. He has been having seizures everyday still, but EVERY night he's have one between 10PM-12AM. It's frustrating bc he might be sleeping and he wakes up having them. Last night I had him in bed and he had his 11PM seizure and he threw up EVERYWHERE. It's frustrating and tough. We wish we could take these crappy seizures away.
1 comment:
Way to go, laying on the sweetness. I probably would have just started crying and then threatened her family if she didn't call me within 3 days. And, of course, I would have been sure to mention that down in Florida "we're" real big on guns. You just better be sure to answer that phone and keep it charged every second of every day. He is so adorable!
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